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My son who is 10 years old was diagnosed with Lupus eight months ago. It is not a life-threatening disease; however it does cause him limitations in various activities with his flare-ups. In which he experiences weekly, especially if he goes up and down the stairs too many times or writing too much with school work. It varies on what causes his flare-ups; it has been less than a year so we are still learning what he should or should not do that causes flare-ups. He is home schooled which is to our advantage, because with his flare-ups he would miss many days of school or be late from morning stiffness. I am not trying to trivialize his condition, look for sympathy or a handout. I just need direction.
Currently I am not working (but looking for employment); therefore I do not have health benefits. My husband currently does skilled labor work, cleaning, painting, roofing, etc. until a he can find permanent employment. Funds are limited, however our two children do have healthcare insurance via Peachcare, but it does not cover all expenses that my 10 year old needs for his Lupus. We manage our basic expenses without filing for assistance, but some expenses that my son needs we cannot cover.
We have a concerned group of family and friends and a few of them mentioned that I can apply for social security disability benefits for my son with Lupus, but could not give details. I am told it can help him financially for services we cannot afford. I give you a brief overview of the situation so you will understand why I am asking these questions. Can I apply for disability for my son and is it a legal process that may cost me money to file? Is it a process that he may have to see other doctors that I may have to pay out-of-pocket expenses? Do I have to file for public assistance to get disability for him? Also, I need to file a 504 Plan with his school for testing and accommodations. How do I go about that? Please point me in the right direction.